OUR NEXT MONTHLY MEETING IS AT
7:00 P.M. ON TUESDAY, OCTOBER 11, 2005
Dr. William Orovan, Professor and Chair of the Department of Surgery,
McMaster University, Faculty of Health Sciences, will present an
exciting new procedure: High Intensity Focused Ultrasound - 'HIFU'.
HIFU is a relatively new treatment to Canada that complements rather than
replaces standard PCa treatments. HIFU will be of interest to survivors
whose earlier treatment by radiation may have been unsuccessful as HIFU can
still be used. It may also be appropriate for patients with other risk
factors such as age or other serious medical conditions.
Dr. Orovan's clinical and academic interests are in Urological Oncology, an
area in which he has published and continues an active practice. He has been
recognized by both medical and non-medical organizations for his
contributions to the community.
Please send your questions for Dr. Orovan to Fred
Norris, Chairman, 905-877-8092 or e-mail fred.norris@ustoo-brampton.com
.
We look forward to seeing you in Room #2, The Terry Miller Recreation
Center, 1295 Williams Parkway at the southwest corner of Williams Parkway &
Bramalea Road. Parking is free.
SEPTEMBER 13, 2005 DR.
STANLEY FLAX
Our season opened with an excellent presentation on 'Male Urinary
Incontinence' by Dr. Flax. His talk drew an impressive turnout - the
hall was packed to near capacity with a crowd of over 80 members, wives and
guests!
Dr. Flax captured our members' attention with his pictures and with
explanations put across with gentle humor. In a nutshell, his talk detailed
many of the causes and remedial measures ranging from conservative to
surgical used to counteract incontinence following various mainstream
treatments for prostate cancer. He covered numerous surgically correctable
problems and offered information and advice related to incontinence
following radical prostatectomy, brachytherapy, radiation etc.
Among the conservative treatments, he discussed the benefits of life style
adjustments such as reducing body weight, reducing alcohol and caffeine
intake, quitting smoking and also the benefits of behavioral therapy such as
bladder training and pelvic floor muscle training. For mild incontinence he
discussed the use of a variety of drugs and explained the application of
peri-urethral injections. He expanded on the workings of urethral slings for
mild to moderate cases.
The last part of his talk dealt with the treatment of moderate to severe
urinary incontinence by the use of surgically implanted devices such as an
artificial urinary sphincter. Study results were included to describe
success rates for the various treatments presented.
Dr. Flax summarized his talk with this hopeful message: 'While
Incontinence poses a major Quality-of-Life issue, there is appropriate help
and treatment available whether it is mild, moderate or severe. Conservative
and Surgical procedures are effective and safe and complications are
relatively uncommon'.
There was significant member participation in the Question and Answer
session that followed. Members openly shared their experiences and concerns
as they asked advice from Dr. Flax. In response to queries from younger
members, some in their forties, Dr. Flax cautioned that, while being younger
and fitter can mean quicker and easier recovery after surgery, there is
danger in becoming 'overactive' too soon after surgery. 'Keigel exercises'
are recommended before the surgery but should be avoided afterward while the
catheter is still in place. It is essential to allow adequate rest during
healing to reduce the risk of developing leaks. The entire session showed
'support-group-therapy' at its best!
We are pleased to announce that Dr. Flax has given us permission to make his
slides available for download along with the usual recording of his talk.
Check our web site: http://www.ustoo-brampton.com .
Audio CDs should be available from the Brampton Library by late October.
Thanks to Dr. Flax for a very informative evening.
2005-2006 GUEST SPEAKERS &
EVENTS
Tuesday, November 8 - Dr. Andrew Bayley will discuss 2 topics
- The Importance of Clinical Trials and Image Guidance in
Radiation Therapy.
Tuesday December 13 - Year end Christmas Pot Luck and
Social and with luck some live entertainment.
Tuesday 10, January 2006 - Dr. Mary Gospodarowicz will
speak on the topic "Surviving Prostate Cancer 10 Years and Beyond".
Future Speakers - We have an exciting line up of speakers and
events coming up for 2006. Please watch for announcements. Suggestions are
always welcome!
Mukul Luthra, Speaker Committee, 519-853-4075, e-mail
mukul.luthra@ustoo-brampton.com .
NEW MEMBER MEETINGS NOW
ONE-ON-ONE INITIAL COUNSELING
Due to the loss of our Mill Street venue, the Steering
Committee has decided not to schedule any New Member Meetings for now.
Instead, anybody newly diagnosed with PCa and their partners, if possible,
can arrange to meet privately with Bob Vandrish or a member of his committee
at a convenient time and location.
Contact: Bob Vandrish, New Member Coordinator at
905-791-5595, Sean Butterly, Special Consultant at
905-454-4237 or Fred Norris, Chairman, at 905-877-8092
e-mail fred.norris@ustoo-brampton.com .
FINANCE
My eldest son's father in law had a favorite saying: "Times change, and
so do fish". What he meant by this of course was, that as we tell our
fish stories time after time about the lunkers that we have caught, or
especially about the ones that got away, our yarns get greatly exaggerated.
And so, I find, do most events that take place in our lives. For the most
part, exaggeration of our personal historical events doesn't really matter
that much, especially as our stories are usually quickly forgotten. However,
there are some areas that do matter, and must be truthfully explained and
related. One such area is your personal experience with Prostate Cancer
and related events.
It is now over eight years since I had treatment. My mind is quite hazy now
as to all the indignities that I was subjected to, and the order in which
they occurred. But what is most important here is that, as mentioned, "Times
Change" and for that matter so too do "Prostate Cancer" treatments.
Subsequently, the available treatments and their results have changed, thank
goodness for the better.
Those of us who have been in the Us Too! group over the long haul have also
seen tremendous and dramatic change in the content of our monthly meetings.
The advent and incorporation of computer technology by our media specialists
is the most noticeable. We have excellent presentations by our speakers who
prepare graphic illustrations to improve our understanding of their subject
matter.
The actual presentations and the accompanying graphics are then made
available to the rest of the world via our much admired web site. What's
more, our local libraries are given CD's containing the audio portions of
these talks, making it possible for people without computers to hear them.
All our services, to our members and to the community at large are not
without cost. Much of it is voluntary labor of course, but the costs are
covered mainly by your yearly subscriptions and generous donations.
So: If you have not already paid the $10 yearly subscription request, I
would humbly request you do so ASAP. While "Times and Fish" may change, the
annual subscription hasn't! Please make cheques payable to Us Too!
Brampton and send them to Gerry Brunjes, 8 Duke
Road, Bramalea, L6T 3K1
Theatre Night: Note. The "Bramalea Live Theatre" group is once
again honouring our cause with a "Theatre Night" to be held on Wednesday,
November 2nd, 2005 at 8 p.m. at the Lester B. Pearson (City
Centre) Theatre. Tickets are only $15.00. As always, seating
is "first come, first seated."
The play is a comedy called "McGillicuddy's Lost Weekend" by Keith
Roulston.
The facts - Hamhock's Police Chief, Ezekiel McGillicuddy, has picked the
wrong weekend to go fishing. The wealthiest woman in town is sure her only
son has been kidnapped, and a crusading female Councilor is dogging Zeke's
every step. Throw in a neighbour with serious romantic designs, and the
laughs pile up at an alarming if not illegal rate, as Zeke tries to get away
from it all.
I will supply tickets by mail if needed, and tickets are available on
consignment.
Sincerely, Gerry Brunjes, Finance, 905-791-3043,
e-mail gerry.brunjes@ustoo-brampton.com .
AWARENESS
Our Second Free PSA Clinic was conducted on Saturday, September
17, 2005 at Shoppers World Mall in Brampton, sponsored by Canadian
Medical Labs and Us Too! Brampton. Supporting me at the clinic were two
phlebotomists and a clerk. Within the first hour 15 men had lined up to have
their PSA checked. A total of 77 men were processed by the clinic.
Passersby expressed much interest in the proceedings but some also expressed
surprise that the clinic was looking for men in the 40 years age group. I
heard comments such as "you've got to be kidding". Some men changed their
minds and signed up when they heard the rationale for the target age group,
but other younger men "didn't want to know".
The precise outcome of the clinic will be available soon; however,
preliminary information shows that slightly under 10 % of the individuals
tested had elevated PSA levels. This appears historically consistent
with similar clinics held at other locations in Canada, including our first
clinic in April, 2004.
Like last year, the individual PSA readings will be reviewed by Dr. Stanley
Flax and referred to respective family doctors as needed. A beneficial spin
off of the clinic is that some recently diagnosed men who showed up for
testing may need counseling as early as possible - the clinic served as a
way to bring our group's existence and our support function to their
attention.
Us Too! Brampton thanks Canadian Medical Labs and Dr. Stanley Flax
for their invaluable support of the clinic. Your suggestions and
comments are welcome.
- Ian Smith, Awareness Coordinator, 905-454-3880, or e-mail
ian.smith@ustoo-brampton.com