OUR NEXT MEETING IS AT 7:00 P.M., TUESDAY
DECEMBER 9, 2003
This is our Christmas Social & Pot Luck Evening. Please bring a food item
and your appetite and be prepared to be entertained by the magical stylings
of our Multimedia whiz, Mukul Luthra, assisted by his jolly elf, Don Grant.
“Mikes” will be available for anyone who wishes to take the floor to make
suggestions or has anything to contribute to help make it a fun evening. For
this evening, let's forget about Prostate Cancer, kick back and have some
fun!
Please contact our Secretary, Margaret Butterly at (905)454-4237 to offer
your assistance and to see what types of food items are most needed to make
the night a success.
Remember that we are now meeting in Room #2, The Terry Miller Recreation
Center, 1295 Williams Parkway at the southwest corner of Williams Parkway &
Bramalea Road, adjacent to the North Peel Secondary School Complex.
Although upstairs, the room is accessible via an elevator located across
from the snack bar. Parking is ample and free.
NOVEMBER 11, 2003 - Dr. Robert Bristow - "Its All
in Your Genes"
"The Dream is Alive", words once used to describe the U.S. Space Program,
aptly described this session. Dr. Bristow held over 90 members, wives and
guests spell bound as he described various projects underway at Princess
Margaret Hospital under its Radiation Medicine Program (RMP). The prognoses
for those of our friends and relatives who may be diagnosed with PCa in the
future should become much more hopeful as these projects progress.
There are a number of measures being developed that aim to optimize the
benefits of radiation to the patient while minimizing damage to healthy
cells and reducing side effects, e.g. Image Guided Radiotherapy, an exciting
process that closely tracks movements of the prostate gland and adjusts
radiation treatments in real time.
Other advances include Dose-Escalated Radiation therapy and
Intensity-Modulated Radiotherapy or "Soft Knife". The Radiation Medicine
Program is investigating these techniques with the goal of integrating
Tumour biology with imaging and precision radiotherapy to develop novel
treatment strategies.
Dr. Bristow then turned to the topic of "Genetic Fingerprinting", which
researchers believe will allow them to improve results by tailoring
treatment to the genetic makeup of each individual patient. He discussed the
role and significance of Prostate Radiotherapy Biomarkers and described how
some of the challenges are being addressed by advanced techniques such as
the use of Laser Capture Micro dissection. The research processes are being
speeded up through the use of increasingly sophisticated high tech equipment
like Positive Emission Tomography (PET) imaging.
Dr. Bristow mentioned that newer equipment is expected to become
increasingly available at Toronto's medical facilities. He also cautioned
against over dependence on technology, describing the potential pitfalls and
the challenges that lie ahead. The research that he described so well is
expected to yield results over the next 10 years and is funded by a number
of government and private organizations.
In conclusion, Dr. Bristow expressed his dream with this message of hope:
"In a better world, prostate cancer treatments would be individualized to
each and every patient, be noninvasive, less toxic and always lead to a
cure".
Dr. Robert G. Bristow M.D., Ph.D. F.R.C.P.C. is an Assistant Professor in
the Department of Radiation Oncology, University of Toronto, a Scientist at
the Ontario Cancer Institute and a Staff Physician at Princess Margaret
Hospital. Members can contact Dr. Bristow through his website:
http://www.bristowlab.123ts.com
or email him at:
rob.bristow@rmp.unh.on.ca
Those of you who missed this presentation or who wish to review the
information will be pleased to learn that the session may be heard or
downloaded as MP 3 Streaming Audio on our web site -
http://www.ustoo-brampton.com.
In addition, an Audio CD of Dr. Bristow's presentation has been prepared and
submitted for entry into the 'Audio Books' section of Brampton library at
the Chinguacousy and Four Corners branches. The CD may also be requested
through other library branches. A Library call number will be posted on the
web site and published in the Newsletter shortly.
A MESSAGE FROM THE CHAIR
Allow me to reflect on this past year: While the advent of SARS put a
serious dent in our monthly meetings, it did not slow down our other
activities.
A successful golf tournament was run, we continued the awareness activities
and above all newly diagnosed men and their partners who sought our help
were seen and apprised of their options.
Our continued success as a group is the result of the many volunteers who
are stepping up to play a part, whether it be serving on the telephone
committee, putting out name tags or preparing the coffee, to name but a few.
My thanks to one and all. May you all enjoy a happy Christmas and a healthy
New Year.
- Fred Norris, Chairman, (905) 877-8092 e-mail:
fred.norris@ustoo-brampton.com
2003-2004 GUEST SPEAKERS
Speakers have now been confirmed for all of the remaining meetings of the
2003 - 2004 season:
Tuesday January 13, 2004 - To open the New Year, Dr.
Mohammed Ibrahim has agreed to host an Open Forum and field your questions
about prostate cancer.
Tuesday February 10, 2004 - Michael J. Scime, B.Sc., M.Sc,
MLT will describe"PSA Methodology". We hope that Dr. John Srigley will also
attend to discuss "Gleason Scores" with us.
Tuesday, March 9th, 2004 - Tanya Giaquinto, has become a
perennial favourite of our group and will once again update us on the topic
of "Nutrition" at this meeting.
Tuesday, April 13th, 2004 - Alex Isbister will return to
discuss Cancer and Its Sexual Implications.
Tuesday, May 11th, 2004 - Arlene Dalton, who gave us an
excellent yoga demonstration last year, has also agreed to an encore and
will discuss "Stress Management" at our meeting.
The Speaker Committee always welcomes your suggestions for future speakers.
PLEASE NOTE: Audio CD's of many of our recent meetings are
available at the Chinguacousy Branch of the Brampton Public Library and from
our New Member committee.
Don Grant, Speaker Committee, (905) 793-7376 email:
don.grant@ustoo-brampton.com
NEW MEMBER MEETINGS
Paul Middleton is rapidly moving into the position of New Member Coordinator
under the tutelage of Don Grant, who will soon be heading to Florida for the
winter.
New Member meetings are normally held on the fourth Tuesday of each month at
Suite 304, 57 Mill Street.
The next scheduled meeting will be held between 6:30 p.m. and 8:00 p.m. but
probably a week earlier than usual, on Tuesday, December 16, so please be
sure to phone ahead to confirm the date.
Please contact: Don Grant, Member Relations, at (905) 793-7376 email:
don.grant@ustoo-brampton.com
or Sean Butterly, Special Consultant at (905) 454-4237 or Chairman, Fred
Norris, at (905) 877-8092 email:
fred.norris@ustoo-brampton.com
FREE P.S.A. CLINIC
Michael Dunn advises: "In your November newsletter you mentioned the free
P.S.A. Clinic at the Wm. Osler Health Centre from 1:30 p.m. to 4:00 p.m.
every Thursday & Friday. I wish to expand on the hours of operation. The
nurse in attendance at the Clinic confirmed to me that they take P.S.A.
patients only until 3:30 p.m. Patients arriving at the Clinic after 3:30
p.m. will be turned away. This 3:30 cutoff time is to ensure that all
patients will be processed by 4:00 p.m. Also, pediatric needles are
available to draw the blood sample. These needles leave little or no
bruising." Thanks, Mike.
While bookings are not necessary, it is best to phone ahead: (905) 796-4066
extension 24010.
Patients must present a requisition from their referring physician with
diagnosis included. These clinics are exclusively for cancer patients or for
individuals who are suspected of having prostate cancer.
Don Grant, Member Relations, (905) 793-7376 email:
don.grant@ustoo-brampton.com
FINANCE
No one on your Steering Committee or indeed in the general membership needs
any reminding that this year, 2003, has been the most turbulent in our
group's history. Financially we have come through in reasonable condition,
but we must ask ourselves, "Can this continue?".
No arrangements have been made to have a 'Theatre Night' this season, and
next year's Golf Tournament may be in doubt, both due to lack of
administrative interest. This comes about mainly because those individuals
who have run these activities in the past feel that it is up to someone else
to step in for a change. These efforts require a lot of time and dedication
to see them through.
The rewards are in knowing that you have done something useful for the
community through our support group, or maybe in just knowing that you have
returned the effort and support that others have exerted on your behalf in
past years.
This brings us to the issue of 'Fund Raising'. As most of us in Us Too!
Brampton are aware, we raised nearly $6,000 last year in support of the
Canadian Prostate Cancer Network's 'Living Proof' campaign, which informed
the general public across Canada about the importance of annual Prostate
Cancer check ups.
This same dedication to our common mission is seen in the CPCN's pamphlets,
advertising, TV talks and discussions, and now in the new booklet 'Prostate
Cancer, a Booklet for Patients'. In my opinion, the CPCN can be extremely
proud of this effort, as the booklet is the best one I have ever seen
dealing with PCa basics.
This much needed information is costly, and the CPCN continues to require
our financial support. Now that 'Income Tax' donation relief can be obtained
we are in a better position to approach industries and firms for
contributions. Perhaps even you might want to 'think about approaching your
place of business'.
Therefore, if you wish to do something useful for your Country and
Community, about the only thing left to say is: DO IT!
To paraphrase John. F. Kennedy....."Ask what you can do for your Country".
After all, we live in the best country in the world; let's do our best to
keep it that way for future generations.
So climb aboard... Give Fred or myself a call...and have a great holiday
season!!
- Gerry Brunjes, Treasurer, (905) 791-3043, email:
gerry.brunjes@ustoo-brampton.com
AWARENESS
Fred Norris and Don Grant made a different type of presentation to twelve
nurses in the main floor recovery room at Wm. Osler Health Centre. The
question posed by Head Nurse Shirley Kent was, "What happens to the patients
when they leave here?" or in effect "What do you [Us Too!] do?"
It was the first time we have made a presentation promoting our
organization. Usually, we promote awareness, our new member programs or our
regular speaker meetings. Fred & Don made the presentation in hospital
protective clothing, which in itself was a sight to behold!
Otherwise, "Awareness" continues to be fairly quiescent; there have been no
further responses from Costco or from Fortino's regarding presentations at
their stores. It will not be possible to conduct any meaningful
presentations before Christmas because of other commitments. However, I am
working with CPCN to expand distribution of their latest campaign featuring
Steve "Red Green" Smith to the Family Health Care group of pharmacies across
Ontario. I am hopeful that CPCN will be able to add FHC pharmacies
nationwide to their distribution list.
The Brampton Public Library system has received the new flyer for New
Members as well as "Living Proof" posters.
On November 13th I attended the Procter & Gamble Health Fair at their
Toronto offices. There was some interest but regrettably not the enthusiasm
that I had expected. Perhaps next year's event will be better. However, I
did meet with one P&G employee whose colleague has recently been diagnosed.
That man - apparently only in his late thirties - is now in contact with the
Newmarket support group.
There is one presentation planned for mid-January for CAW Local 1967
members.
I am waiting for other GTA support groups to agree to participate in the
March Home & Garden show, running from the 18th to the 21st of March, from
10:00 a.m. to 9:00 p.m. each day. I expect to assign one group from the area
to staff each day of the four-day show, . To allow for contingencies and
unavoidable absences, at least eight volunteers from our group will be
needed to provide staffing for the 11 hours of our day. Anyone interested in
helping out, please contact me.
Ian Smith, Awareness Coordinator, (905) 454-3880, NEW e-mail:
ian.smith@ustoo-brampton.com
OUR WEB SITE CONTINUES TO EVOLVE -
www.ustoo-brampton.com
Check the web site frequently for new items of interest to all. For example,
you can now download MP 3 audio presentations by Dr. Robert Bristow ('It's
All in Your Genes' - November 11, 2003), Dr. Richard Casey ('Clinical Trials
in Prostate Cancer' - October 14, 2003 ), Dr. Stanley Flax ('Brachytherapy
or Radical?' - September 9, 2003 ), Tanya Giaquinto ('Nutrition' - March 11,
2003) and Alex Isbister ('Cancer and Emotion' - February 11, 2003).
Contact Mukul Luthra, Multimedia, (905) 873-8367, email:
mukul.luthra@ustoo-brampton.com
STILL DON'T BELIEVE IN PERSONAL COMPUTERS OR THE
INTERNET?
We have just received the following invitation from researchers at Princess
Margaret Hospital. This is your chance to participate in any or all of a
series of three hands-on computer training courses. After taking these
courses, you will know how to access the Internet to research issues that
concern you and the researchers will have your opinions on an important
effort to teach newly diagnosed patients and their relatives to live with
Prostate Cancer and its aftermath. Please do consider taking part:
RESEARCH STUDY: ATTENTION PATIENTS WITH PROSTATE
CANCER
INTERESTED IN ATTENDING AN INTERNET TRAINING COURSE?
Are you interested in volunteering for a study designed to test the course
and teaching materials for an Internet training course designed for Patients
with Prostate Cancer?
TO BE ELIGIBLE FOR THIS STUDY, YOU MUST:
· Have a diagnosis of prostate cancer OR
· Be a partner/friend of a patient with prostate cancer
If you are interested in participating in this study, please call Joan
Basiuk, Clinical Research Coordinator, at 416-946-4501 ext. 2282. This study
is supported by a grant from the Change Foundation.
YOU ASKED FOR IT! (A SEASONAL JOKE, THAT IS)
Did you know... According to the Alaska Department of Fish and Game (and my
wife), while both male and female reindeer grow antlers in the summer each
year, male reindeer drop their antlers at the beginning of winter, usually
late November to mid-December.
Female reindeer, on the other hand, retain their antlers till after they
give birth in the spring. Therefore, according to every historical depiction
of Santa's reindeer, every single one of them - from Rudolph to Blitzen -
has to be a girl reindeer.
We should have known! Only women, while pregnant, would be able to drag a
fat man in a red velvet suit all around the world in one night and not get
lost!
Jim Dorsey - Newsletter Editor Us Too! - Brampton
(905) 453-3038 email:
jim.dorsey@ustoo-brampton.com